Kirsty MacCuish I know (obviously) that Amelia has Down syndrome, and with that comes a learning disability. I know Noah, is what you call a ‘typical’ child. I knew at some point Noah would overtake Amelia in certain aspects of learning. I did not expect it to happen at 30 and 15 months. And I’m Read more about The tortoise and the hare[…]

Tina Carr When you hear the words respite or hospice it can be quite scary. Statements like ‘life threatening illness’, ‘not expected to reach adulthood’ and ‘end of life care’; all of these things make it completely understandable as to why some people may not want to engage with the service. But when you see Read more about What respite means to me[…]

On the 6th July, Heidi Crowter and Aidan (with mum Máire) are going to the High Court to challenge the law that allows termination to full term if a baby has a diagnosis of Down syndrome. Jamie McCallum, chairman of Wouldn’t Change A Thing and dad to Rosie who has Down syndrome tells us why Read more about THE BALANCING OF RIGHTS[…]