Vikki Rooney When I was little my best friend was called Pippi. Pippi has Down syndrome, she’s now 34 and I still see her.  My mum always tells me how I always said to her “When I grow older I would love to have a baby with Down syndrome”.  Fast forwards 20 years, it was Read more about The day I won the lotto[…]

This week, our thanks go to Danielle’s mum, Christina Garland, who shares some of their experiences over the past 30 years. Danielle, we truly hope you get to celebrate your upcoming 30th in style! On Sunday 21st April 1991, at 5.40 am, I gave birth to our beautiful daughter and second child Danielle.  She was Read more about Danielle[…]

Liz Arriens I was listening to a podcast interview recently with Nims Purja, a Nepalese mountaineer, who set and accomplished amazing goals. He climbed 14 mountains in a significantly quicker time than has ever been done before. I wanted to share with you what he said that struck me. He said the little things matter. Read more about How we have grown this month: A matter of the little things[…]

This week’s blog was written for us by Melissa Kynoch, about her son Bertie’s heart surgery. After a traumatic time last January, Bertie celebrated his first heart day this week! Thank you so much for sharing your story with us Melissa. I’m watching my son Bertie play with his older brother Dei, he’s full of Read more about Bertie’s Heart Day[…]

Last summer, Wendy O’Carroll was kind enough to share with us this post about her son, Oliver, who is an incredibly talented professional photographer. August 10th 2020 and I awake to the day that my son Oliver’s book, ‘Oliver’s Britain’, is published. We are surrounded by boxes and teetering piles of beautiful books, along with Read more about Oliver Hellowell – Photographer with Down Syndrome[…]

This week’s blog is written by Tina Carr, mum to Darla. Thank you so much for sharing this with us Tina. “They’ll get there in their own time.“  A phrase you hear a lot when you have a child with additional needs. Once you get past the unnecessary sympathetic head tilts, the ‘I’m so sorry’s’ Read more about Milestones and memories…[…]

On the blog this week, Zoe Taylor tells us about making the decision to transfer her daughter Maddison from mainstream to SEN provision, thank you Zoe, for sharing your experience with us. Maddison attended a mainstream school from nursery with a full EHCP until the end of year 1. The school was very supportive from Read more about Making a change: Our transition from Mainstream to SEN provision[…]

Liz Arriens As November began, life was going swimmingly for me, my husband Kevin and our three-year-old daughter Coraline. We’d got our second “lockdown” routine going on smoothly. The difference was, this time Coraline was at preschool each day. I was happy she was stimulated, I was working on my goals (writing a book, and Read more about How we have grown during lockdown[…]

On Christmas Eve, Teach Me Too will launch a new online library of educational videos  specifically designed to help children with Down syndrome develop skills in speech, language and cognition, free to access for all.  A Christmas present to our community and a silver lining of 2020. The library comprises of 20 short videos made Read more about Teach Me Too launch: A Christmas present to our community[…]

Jamie McCallum That’s the clarification that many parents of a child with Down syndrome have had to start many conversations with over the last few weeks. I’m tired of saying it. Tired of seeing other people having to say it. Most of all, I’m tired of it falling on deaf ears when it is said. Read more about A blog that’s NOT about the “right to choose”[…]