Directory

For more information about Down syndrome we have provided links to relevant organisations, blogs and support groups.

Organisations

Other Organisations

NCT Down Syndrome Page

www.nct.org.uk › baby-toddler › m…My baby has Down’s syndrome: support and information for new parents | NCT

The Makaton Charity

https://www.makaton.org /

Mencap

https://www.mencap.org.uk/

Family Fund

https://www.familyfund.org.uk/

Singing Hands

https://singinghands.co.uk/

DS Active

https://www.dsactive.org.uk

DanceSyndrome

https://www.dancesyndrome.co.uk

Blogs

I Am River

iamriver.net

https://www.facebook.com/IamRiverDownSyndromeAwareness

Feeling upside down

https://www.facebook.com/FeelingUpsideDown

Downs Side Up

http://www.downssideup.com/

https://www.facebook.com/downssideup

Down Syndrome – Raising Awareness and Shifting Attitudes

http://www.forceofnature21.com/

https://www.facebook.com/Downs-Syndrome-Raising-Awareness-and-Shifting-Attitudes-111884258891638

Fresh as Daisy

https://www.facebook.com/freshasdaisy2017

Downright Joy

https://www.facebook.com/downrightjoy

http://downrightjoy.com/

Sienna meets world

https://www.facebook.com/Siennameetsworld

https://www.instagram.com/sienna_meets_world

Coraline and Us

https://www.coralineandus.com/

https://www.facebook.com/coralineandus

Hormones and Chromosomes

https://www.facebook.com/hormonesandchromosomes

Makaton with Lucinda

https://www.facebook.com/Makaton-with-Lucinda-2138611176458442/

Frankie says relax about T21

https://www.facebook.com/frankiesaysrelaxaboutt21/

T21 on our way with Jossie May

https://www.facebook.com/T21onourwaywithJossieMay

Support Groups

UK Wide (online)

Wouldn’t Change A Thing Parent Support Group

https://www.facebook.com/groups/801281006738525

Designer Genes Parent Support Groups (from birth year 2013 onwards)

https://www.facebook.com/groups/837355226423695/

DSUK PADS Great Expectations for pregnant mums expecting a LO with Down Syndrome

https://www.facebook.com/groups/415274562687672/

DSUK PADS Positive about Down syndrome – New Parents

https://www.facebook.com/groups/2188980851370457

DSUK Positive about Down syndrome Preschool Parents

https://www.facebook.com/groups/1374749646042816/

Future Of Downs Pregnancy Support

https://www.facebook.com/groups/FoDPregnancySupport/

Greater London

Down’s South London

http://www.downssouthlondon.org

Bexley Down’s Syndrome Group

https://www.bexleydownssyndrome.co.uk/

Downright Excellent

https://downrightexcellent.org/

Get On Downs (Sutton & surrounding areas)

https://www.facebook.com/GetOnDowns

South East

Berkshire, Buckinghamshire, Hampshire, Kent, Isle of Wight, Surrey, Oxfordshire, East Sussex, West Sussex

Brighton & Hove Down Syndrome Support Group

https://www.facebook.com/groups/255306491174545/

Chichester Down Syndrome Support Group

https://chichesterdownsyndrome.org.uk/

Stepping Stones – Down Syndrome Support Group – Hants, Surrey & Berks

https://steppingstonesds.co.uk

Down Syndrome Oxford

https://www.dsoxford.org.uk

Seaford Down Syndrome & special needs support group

https://www.seaford-dssnsg.co.uk

21 Together – Kent

https://21together.org.uk

Portsmouth Down Syndrome Support Group

https://portsmouthdsa.org

21 & Co (South West London and Surrey)

http://www.21andco.org.uk/

Down Syndrome OK (South London, Surrey & Sussex)

https://downsyndromeok.org.uk/

East Berkshire Down’s Syndrome Support Group

http://ebdssg.org.uk/

Kent Wide Down Syndrome Support Group

http://www.kentwideds.org/

North Bucks Downs Syndrome Group

https://www.nbdsg.org.uk/

PSDS (Surrey)

https://psds.info/

South Bucks Down’s Syndrome Group

https://www.sbdsg.org.uk/

Sparkles – Supporting Children with Down’s Syndrome (Buckinghamshire)

https://sparkles.org.uk/

The Rainbow Club (Isle Of Wight)

https://www.facebook.com/groups/82487080642/

Worthing Down Syndrome Group

https://www.facebook.com/groups/231524630369400/

South West

Somerset, Bristol, Gloucestershire, Swindon, Wiltshire, Dorset, Devon, Cornwall

Cotswold Downs Syndrome Group

https://cotswolddownssyndrome.org

Cornwall Down Syndrome Support Group

https://www.cdssg.org.uk

Bristol Down Syndrome Trust

https://www.bristoldownsyndrometrust.org.uk

Plymouth and area Down’s Syndrome Support Group

https://www.facebook.com/groups/412630642443459/

Swindon Down’s Syndrome Group

http://www.swindondownsgroup.org.uk/

Ups and Downs South West (Somerset)

http://www.upsanddowns.net/

East of England

Essex, Hertfordshire, Bedfordshire, Cambridgeshire, Peterborough, Norfolk and Suffolk

Bedfordshire Down’s Syndrome Support Group

https://www.bedsdownssyndrome.co.uk/

Boston Down’s Syndrome Family Group

https://www.facebook.com/groups/414544972259122/

Dance21 (Essex)

http://dance21.co.uk/

Down Syndrome Extra21 (Essex)

https://www.extra21.org.uk/

Down Syndrome Group Northamptonshire

http://www.downgroupnorthants.co.uk/

Down’s Syndrome Norfolk

http://downsyndrome-norfolk.org.uk/

Down Syndrome Extra21 (Essex)

https://www.extra21.org.uk/

Down Syndrome Group Northamptonshire

http://www.downgroupnorthants.co.uk/

Just the way you are (Milton Keynes)

https://www.facebook.com/Just-the-way-you-are-MK-229500827183789

Peterborough Area Down’s Syndrome Group

http://www.padsg.org/

Project 21 (East Anglia & Essex)

https://project21uk.com

Up On Downs (Hertfordshire)

http://upondowns.com/

Ups ‘n’ Downs (East Northamptonshire)

https://www.upsndowns.co.uk/

Upwards with Downs (Essex and Hertfordshire)

https://www.upwardswithdowns.co.uk/

West Midlands

Herefordshire, Worcestershire, Shropshire, Staffordshire, Warwickshire, West Midlands

The Ups of Downs – Leamington Spa

https://upsofdowns.co.uk

Proud (Walsall)

http://proudwalsall.org/

Shopshire Down’s Syndrome Group

http://www.sdssg.co.uk/

Solihull Down Syndrome Support Group

http://sdssg.org.uk/

Stoke & Staffordshire Downs Syndrome Social Group

https://www.facebook.com/Stoke-and-Staffordshire-Downs-Syndrome-Social-Group-306138596638319/

Ups and Downs (West Midlands)

https://upanddownswm.weebly.com/

East Midlands

Derbyshire, Nottinghamshire, Leicestershire (including Rutland), Lincolnshire and Northamptonshire

N.E. Lincs Down Syndrome family support group

https://www.nelincs-downs-syndrome.co.uk

Down’s Syndrome Derby

https://www.dsderby.org/

Leicestershire Down’s Syndrome Group

https://www.leicesterdownsgroup.co.uk/

Lincolnshire Down’s Syndrome Support Group

http://www.lincsdownsyndrome.org.uk/

Nottinghamshire Down’s Syndrome Support Group

https://www.facebook.com/groups/162922984427836

North East

Northumberland, Tyne and Wear, County Durham

Down Syndrome North East

http://www.dsne.org.uk

North West

Cheshire, Greater Manchester, Lancashire, Merseyside, Cumbria, Isle of Man.

Bolton Smiley Faces

http://boltonsmileyfaces.org.uk/

Downs Syndrome Liverpool

https://downsyndromeliverpool.org.uk

South Manchester

https://www.dsmanchester.org.uk

Cheshire Down Syndrome Support Group

https://www.cheshiredownssyndrome.com/

Cumbria Down’s Syndrome Support Group

https://www.cdssg.net/

DS West Pennine Down’s Syndrome Family Support Group

https://sites.google.com/site/dswestpennine/

East Lancashire Down’s Syndrome Support Group

https://www.eastlancsds.com/

Ready Steady Down’s (St Helens)

https://www.facebook.com/groups/readysteadydowns

West Coast Down’s Syndrome Support Group

https://www.facebook.com/WCDSSG/

Yorkshire and the humber

South Yorkshire, West Yorkshire, North Yorkshire, East Riding of Yorkshire, Lincolnshire

Downright Special – Hull

https://www.downrightspecial.co.uk

Sunshine & Smiles – Leeds Down Syndrome Network

https://sunshineandsmiles.org.uk

Down Syndrome Training and Support Service Ltd (Bradford)

http://www.downsupportbradford.btck.co.uk/

Down’s Syndrome North Yorkshire

https://www.facebook.com/groups/420414071824953/

Downright Special Network ((Hull & East Riding of Yorkshire)

https://www.downrightspecial.co.uk/

Huddersfield Down Syndrome Support Group

https://www.hdssg.org/

North East Lincolnshire Down’s Syndrome Family Support Group

https://www.nelincs-downs-syndrome.co.uk/

RODS – Rotherham Organisation for Down’s Syndrome

https://www.rods-rotherham.org/

Sheffield Down Syndrome Support Group

https://www.sheffielddownsyndrome.co.uk/

Wakefield & District Down’s Syndrome Support Group

http://downsyndrome-wakefield.net/

York Down Syndrome Support Group

https://www.ydssg.org/

Wales

21 Plus (Monmouthshire and Forest of Dean)

https://21plus.org.uk/

South East Wales Down’s Syndrome Group

http://www.sewdssg.org.uk/

Central Wales Down’s Syndrome Support Group

http://oakwellbarns.co.uk/downs-syndrome/central-wales-downs-syndrome-support-group/

Scotland

There are 9 local branches of Down Syndrome Scotland, located throughout Scotland.

https://www.dsscotland.org.uk/your-local-branch/

https://www.facebook.com/dsscotland/

Ayrshire – https://www.dsscotland.org.uk/your-local-branch/ayrshire/

Dumfries & Galloway – https://www.dsscotland.org.uk/your-local-branch/dumfries-galloway/

Central – https://www.dsscotland.org.uk/your-local-branch/central/

Angus – https://www.dsscotland.org.uk/your-local-branch/angus-branch/

Edinburgh & the Lothians – https://www.dsscotland.org.uk/your-local-branch/edinburgh-and-the-lothians/

Aberdeen City & Shire – https://www.dsscotland.org.uk/your-local-branch/aberdeen/

Highlands & Islands – https://www.dsscotland.org.uk/your-local-branch/highland-and-islands/

Tayside & Fife – https://www.dsscotland.org.uk/your-local-branch/tayside-and-fife/

West of Scotland – https://www.dsscotland.org.uk/your-local-branch/west-of-scotland/

Organisations

Down Syndrome Association

Down Syndrome Wales

Down Syndrome Scotland

Down Syndrome Ireland

Down Syndrome International

Down Syndrome Education International

Down Syndrome Research Foundation

Down Syndrome Development Trust

Don’t Screen Us Out

PADS Positive about Down Syndrome